MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: New to MDS #4280
    Maddie
    Member

    Terri

    Glad to hear things are working for your husband. Dad’s Dr. originally said that he should know if Vidaza was working after the 4th treat., but it may take 5 or 6 treat. Now he’s wants to stop treatment after this 4th round if his counts aren’t up. We’re confused as to why he would discontinue treat. We’ve also asked for Procrit to help with transfusions issues, but he’s against that for now as well. I notice that your husband is on vidaza as well as procrit. Has the procrit helped reduce the need for transfusions? One other thing, what vitamins and supplements does he take, and do they help? Thanks for all of the info…this is new to us and I’m trying to become educated on anything that will help him now and our options for the future. Thanks again…and continued good wishes for your family.

    Debbie
    Dad (66) RAEB Oct 04 11%blast vidaza

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