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PaigeSMember
Chris,
This is a wonderful place to come for support and guidance with this disease. I agree with Suzanne….try to wait until you see the dr. before reading too much. I made the mistake of researching MDS too soon and was a basket case before we even saw a dr. Lots of the info you read online is out dated too.
Hang in there!
PaigeSMemberOh, I missed that episode. It’s nice to know that we’re getting more “press”
I don’t know where you could find the statistics, but I bet someone on here will!!!
PaigeSMemberI had not noticed this question on the boards before and thought it probably was not related to MDS, but once again, you just never know what this disease will do to you!
The orthopedic dr. said that his back is just worn out because of all the lifting and hard work he’s done for the last 74 years! There was a bulging disk too.
Our hemo/onc dr. basically said that MDS does not cause pain and it had to be from something else and just offered to give pain meds. At least the orthopedic dr offered to give cortosone and some other kind of shots. I just hate to have him suffer like this!
Thanks again for all the responses! You guys are great!
PaigeSMemberCarrie,
The waiting is the absolute worse!! Hang in there and ignore people who think they’re “helping” you. No one understand until they’ve been through this first hand.
Hugs,
PaigePaigeSMember{{{{Sheryl}}}}
Big, big hugs to you! I’m so sorry that your mom is having to go through so much.
Please keep us posted and take care of yourself. You will both be in my prayers.
PaigeSMemberThanks and the same to you!
We met my mom and MIL at a restaurant about half-way between our homes (60 miles) My dad didn’t come with her. He was too busy working on his garden and around the house. I guess that’s good news. He had a platelet transfusion last week. It’s amazing what they can do for him!
I hope everyone is having a restful and fun day with their families!
PaigeSMemberDoreen,
I will be thinking of you this week. Please keep us updated on your progress.
Hugs!
PaigeSMemberThat was one of the first things I started looking for when Daddy was dx. I sincerely think that my dad developed it from working in chemical plants for 50+ years. Of course, it’s not proven, but much research shows that it can be developed from certain chemicals.
I don’t believe it’s hereditary. ::crossing fingers::
PaigeSMemberWhat wonderful news!!!!
PaigeSMemberThat’s great news about his counts.
My dad didn’t respond to Vidaza, but the doctor did say that it is very normal for your platelets to go way down before they will come up when taking the shots.
Hang in there!
PaigeSMemberButch,
I’m new here, but read the archives and your stories about Kelly.
She was very much loved! It showed in everything you wrote!!
I will keep you and her girls in my prayers.
Hugs,
PaigePaigeSMemberWendy,
Wow! How were they able to remove the blood from the lungs? What were his symptoms?
Hugs!
PaigePaigeSMemberThanks Carl! I’m working on trying to get Dad to go to Houston. He hates the city and feels better about Dallas since I used to live there, his sister is nearby, and my children were born at Baylor. He’s afraid of all the traffic. :p
I know that his age will limit much of the treatment options, but the man planted a 5 acre garden this year!! He is fighting it with all he’s got. Our last Dr. really gave him NO hope
I’d like to find someone who will offer him some sort of plan, even if it’s just tx maintenance.PaigeSMemberHi Wendy,
He really had no side-effects to the Thalidomide and Vidaza other than the fact that his platelets would hit rock bottom. They have found nothing besides tx that can bring them up.
I asked our last doctor about classification and she said he was unclassified..just severe thrombocytopenia.
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