MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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    Posts
  • in reply to: Please Help Me #8713
    ali_clare
    Participant

    Hello,
    Thanks to everyone for their kind words you are all stars!!! I feel I am not alone.
    Ali

    in reply to: 18 Yr Old Son with MDS #8682
    ali_clare
    Participant

    Hello,

    I am very sorry to hear about your son. I am 26 and my fiance (34) he was diagnosed with MDS (raeb 18%). Both your son and my fiance is so young to have this disease as it is so rare in younger people. My fiance has had his first round of chemo but did not get remission so he is now on his second induction with mylotarg.He is needing a transplant too.

    What subtype of MDS does your son have?

    Ali

    in reply to: Husband Vidaza or not? #8689
    ali_clare
    Participant

    Hello Fran,

    I am 26 and my fiance (34) was diagnosed with MDS (raeb 18%) he has had his first round of chemo but did not get remission so he is now on his second induction with mylotarg. I am familar with your husbands diagnosis but being 73 I am not sure of how he would take the chemo although I have heard mylotarg is proving very effective for elderly patients.I am not a doctor so I think it would be best to speak with someone who is qualified. I am not sure where you are in the world but here is the number of leukaemia care they are so supportive and will give you the information you need. The number is 0800 169 6680

Viewing 3 posts - 1 through 3 (of 3 total)

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