MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: Signs of end stage MDS #44699
    Teresa
    Participant

    Hi Rose, can you please PM me @ marites.relatos@gmail.com. Thank you.

    in reply to: rest pain #44695
    Teresa
    Participant

    Hi Nancee, praying for you. My mom is 84 years old and also given a 6 month prognosis in August. She is doing much better now, improved blood counts and even working out. She goes to Causenta in Scottsdale, Arizona. They have a lot of success there with late stage cancers. All the best, Teresa

    in reply to: My 76 yo father has mds #44381
    Teresa
    Participant

    My 84 year old mom was recently diagnosed (August 2018) with high risk MDS. She did not want to do chemo. Our family looked into alternative treatments and fortunately found a very successful and results driven center in our area – not only are her numbers improving but fatigue and pain are gone. She is back to her old self, energetic with a positive disposition. Alternative center did NutrEval test that showed her vitamins, mineral and nutrient deficiencies. Test also reveals any metal toxicity. Just recently, Medicare has now approved for this test to be covered – please speak to your doctors about this. Quality of life and strong immune are critical to fighting MDS. Praying for everyone inflicted with MDS.

    in reply to: rest pain #44380
    Teresa
    Participant

    Hi Nancee, my 84 year old mom had the same issues with pain. She is seeking alternative treatment and not only did her numbers improve but pain has gone away. Pain in her legs immediately went away after the 1st week – ARP wave therapy, Novothor and pulse magnetic fields. Hope this helps.

Viewing 4 posts - 1 through 4 (of 4 total)

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