[Anita Finer]

This is a very confusing disease. My platelets are down to 25. My hemoglobin went up to 8.3 It was low a week .
before.
I want to end the transfusions as I’m 89 as of June 9th . I am not afraid of dying but I am afraid . Of what I don’t know.??????? Maybe laying in bed waiting for death.

[Anita Finer]

When does MDS become ADL?

[Anita Finer]

Kathy, thank you for your response. It meant a lot to me having you share your honesty.
The only treatment I receive is blood transfusions. After my last transfusion of two units my hmg went down
to 7.6 in 5 days. so in a week after ,(yesterday 5/7 I had 2 more units of blood )
As I’m 88, almost 89 in June, and getting weaker and feel okay with my dicision to stop transfusions a month or 2.
I hope you don’t mind my sharing this with you, but I feel that your response gives me more clarity and support.
I feel that we don’t really know what is on the other side. I also send love.

[Anita Finer]

Thank you so much for sharing about your husband. I understand, my platelets are low, but I only get blood.
I am also tired of it all. My low platelets prevent me from getting a port, and I’m running out of veins for transfusions.
I’m divorced so my two daughters take turns taking care of me.
Thank you again, this is the info I want to hear. I figure it will take me a month to move on, after I stop transfusions. Hospice is great.

[Author]

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