[Sandy Stovall]

I have a question regarding my husband who has been on EPO for about three or four years now. He has had low blood counts all his life. Got to the place where he was fainting. Saw every doctor imaginable. Finally he was sent for a biopsy. That showed the “MDS” characteristics and he also has Jack-2 mutation. He started at 40,000 injection every two weeks. His levels never got to 10 and maintained. Med was upped to 60,000 but still up and down levels. Dec. 2017 results .. WBC 31.8 LY 13.3 MO 4.7 GR 82.0 LY# 4.2 MO# 1.5 GR# 26.1 RBC 3.22 Hgb 9.2 Hct 29.2 MCV 90.7 MCH 28.6 ////////mchc 31.6 RDW 35.7 Plt 506 MPV 12.2.
Now to add to this story. This year has been hellish! He had kidney stone surgery .. found his prostate so enlarged that the entry into left kidney was impossible. The doctor gouged him really bad. Lots of blood loss etc. A second surgery was done on right kidney to blast the stones. More complications followed .. Than a CT was done and they found he has a PVT. Thought he had cirrhosis .. just got biopsy report back .. he doesn’t! Now they are looking at a mass in his heart… he’s had severe ascetes, on meds, Portal hypertension , swollen spleen … and the list goes one. They are still trying to figure this out. He has lost so much weight and looks like a walking skeleton. Alarming to everyone. He can’t eat much as he feels full. Liver doctor today suggested this may have a tie to MDS (which he was not familiar with!) We have scheduled a second opinion with Vanderbuilt Hospital with a liver and gastro specialty group. Is this a good idea. We are about broke and just need to guidance. Male 73 Thank you

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