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Brenda Peacock
ParticipantI also just left Dr. office breathing a sigh of relief. WBC and platelets are back up some and HGB and RBC in normal range. So we are still stable and will see him in 3 months. Very happy today with that news! This disease gives me terrible anxiety.
ParticipantHi Steve, I believe under 5% is the number they shoot for. So looks like you may be in good shape for now. That’s good news!
Brenda
ParticipantSteve, here is another useful website:
marrowforums.org Quite a bit of useful informationParticipantBone Marrow Biopsy (BMB)
ParticipantI believe it should be on BMB report. Not the CBC.
ParticipantSteve,
I believe it has something to do with the percentage of blasts. When I was diagnosed I had none. I will be having another BMB within the next couple of weeks. Hopefully there is no change. I have been pretty stable for 2 years. You have a great positive attitude and this disease has a mind of its own it seems and can change in a minute or can remain stable for awhile. The Dr I had before this one never checked LDH so it makes me wonder how accurate a marker it is since I have seen that others have never seen the test. Happy anniversary to you and your wife! Keep up the positive attitude! That is something that is difficult for me since I am only 57. But I do try and I feel great.
Brenda
ParticipantHi Steve,
I have seen that test also and my numbers were right about where yours are. I was a little freaked out when I looked it up but I then looked back from when I was 1st diagnosed with MDS 2 years ago and it was in the 700’s. Now Its around 635. If you google it you can find lots of information on reference ranges and causes. I am going to mention to my Dr. when I see him on Friday. I’ll let you know what he says.
Brenda
ParticipantHi, I had that when I was first diagnosed. I believe it was due to being anemic, once I brought my iron up it stopped. Haven’t had it since.
November 7, 2018 at 8:13 am in reply to: Is there a link between mds and lisiniprol and hydrochlorothiazide #44349ParticipantHi Pat,
That’s interesting because I was started on Lisinoprol years ago but couldn’t take it because it made me cough. Was put on Amlodipine which I hear is bad also. I also took hydrochlorathiazide for years and recently asked if I could take it along with my Losartan. They wouldn’t give it me but wouldn’t give me a reason. I was diagnosed with MDS July 2017 low risk. Have remained pretty much stable since. I am going to ask my Dr. about this next visit. Prayers to you and your husband.
Brenda
ParticipantHi I am 55 female recently diagnosed with MDS I after being hospitalized for an open wound that wouldn’t heal. I was anemic and my wbc count 0.6 then gradually went up to 2.3. My oncologist decided I needed Sucrose Iron, which made my ferritin levels over 500. That concerns me since my other Dr. Didn’t ever mention the the Sucrose Iron. Now my wbc have dropped to 1000 and nuetrophils at 500. What would cause the level to drop. I had a a little bit of a cold but have been over that for a week now. My RBC are 12.4 and platelets have gone from 123 to 98. I feel fine but was told to be careful of infection. I was never told what class of MDS I have (afraid to ask) but they say its low risk and have no blasts. I wonder if I need a 2nd opinion. My Oncologist told me to stay away from the big University hospitals. That they would just use me as a guinea pig. Any insight?
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