MDS is a bone marrow failure disorder
MDS is a blood cancer
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  • in reply to: WONDERING— #46964
    Jim
    Participant

    I have two syringes of Vidaza every day for 5 days and then I have five weeks off. I rotate the injections–Monday upper left arm; Tuesday upper right arm; Wednesday left side belly; Thursday right side belly and then on Friday I go back to the left upper arm. So far…no problems!

    I found taking the infections late afternoon that when nausea kicks in some five hours later, I can just hop in bed and usually sleep it off. Found nausea medicine side effect worse than the bouts of nausea so I don’t take that.

    Been doing this going on six years now.

    Jim

    in reply to: Signs of end stage MDS #46904
    Jim
    Participant

    I have been on Vidaza for a little over five years. The typical cycle was five days receiving injections and repeating this every 28 days. Recently we have tried extending the cycle to five weeks and even six weeks.

    Noticed significant change, now quickly out of breath and want to sleep a lot more than before. Not sure what Vidaza does to the body but I’m going to ask the Oncologist to go back to the four week cycle and see if things change.

    The other thought. there may be a limit as to the effectiveness of Vidaza and perhaps what we are now entering is the final stages of this disease.

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