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diner
MemberI started the Vidaza yesterday (Sept. 6). I got another shot today. I took the anti-nausea pill first and it worked great. Please pray the Vidaza will help me. When they said my platelets would prob. go down the first round, that is really bothering me because they are only 8000. Although a hand count was done because it was discovered that my platelets are so large that a machine doesn’t recogize them by the size. The hand count was 26,000 (still low but better than 8,000).
MemberI am 62 yrs. old and have had MDS for 2 yrs. My dardepoten shots don’t help anymore and I’m transfusion dependent. I just started the Vidaza shots yesterday because any of the other options wouldn’t work on account of my very low platelet problem. I was told that I would have a 40% chance of it helping by OHSU and the brochures on the drug. Other drugs that will be coming out, aim at helping the red cells only and I need all of them.
MemberKathyrn, I really don’t know what I’m doing since this is my first time on the forum. Got the web site from “Jim Bob”. I’m going to be startin Vidaza Sept. 6th. I’m 62 and have been through Lymphoma twice (last time had stem cell transplant). Now have MDS and am transfusion.
I thought you had to take Vidaza for 4 months to even know if it works. DinerMemberQuote:Originally posted by Kathryn:
Hi LuAnn,My father took Vidaza for two rounds. The fist round was extremely hard on him, especially around the 14th day. He was very determined though and kept moving… dressing in the a.m., walking around the house, 2lb. weights in his hands excercising his arms while he sat… Honestly, I don’t know how he did it feeling as drained as he was and with his legs being so extremely weak. He also rec’d. the anti-nausea meds. along with it that helped. The second round was much easier on him. I think part of that was because he was stronger that time around.
If you have any questions, please feel free to ask.
Kathryn
MemberI’m new to the forum. I’m starting Vidaza Sept. 6th and am very nervous, but I’m transfusion dependent right now. I had a stem cell transplant for Lymphoma in 98 and have had the MDS since 2003.
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