[Diane Tatterton]

My 75 year old father was diagnosed with MDS/MPN with secondary myelofibrosis in Feb 2017. Symptoms developed very rapidly late Nov/early Dec and he is now dependent on weekly red blood cell transfusions. We are based in the North East of England and he is currently being treated at our local hospital. Dad started hydroxycarbamide mid Dec and has just started Ruxolitinib this week. Main symptom (although there are many) is severe fatigue. This is such a rare disease we are keen to hear from any other overlap patients willing to share their experiences and advice.

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