[doreen]

Thank you Jimbob.. I think this is what I needed to hear this evening. I was diagnosed with mds in April 2003. No transfuctions, no medications, not even sure what type I have only that they gave 1 -2 years before I would get sick. At this time I am waiting for news on a cord blood transplant as they have only been able to find a 8/10 match for me for a bmt. They will use that but I want to explore other options. As I sit here on a snowy evening in Minnesota, I find this board full of wonderful people who all know what everyone else is going through and can sympathize and give hope. Thank you all.

Doreen

[doreen]

Hello… I was diagnosed with mds at the Mayo in Rochester in March 2004. I have been seeing a hemotologist there (only 2 times) and have talked with the head of the bmt group about getting a bmt. I have wondered if I should see wonder if I should make an appt with Dr. Letendre but always hope that my records are also being seen by him. Sometimes its hard to know where to turn. I tried to look for a support group for mds in rochester but have not found anything. Currently I spend alot of time looking at websites and getting more and more depressed!

[Author]

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