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Viewing 15 posts - 31 through 45 (of 448 total)

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April 4, 2008 at 6:49 pm in reply to: Procrit Inections #20477

eve
Member

hi lynne

i looked back on my dad’s records and as far as i can see the highest dose he ever got was 60,000 per week (given on the same day)

also i think (not 100% sure) that they will not give procrit once the hgb goes above 12

good luck
eve

March 28, 2008 at 12:49 pm in reply to: Dacogen or Vidaza #20260

eve
Member

dear zeke

my thoughts and prayers are with you and your family at this most difficult time

eve

March 26, 2008 at 9:31 pm in reply to: Dad in the hospital; any ideas? #20042

eve
Member

dear roseanneinia

i am so sorry to hear about your father’s passing

may time help ease your pain

eve

March 15, 2008 at 8:15 pm in reply to: reaction to platelets #20374

eve
Member

it means he should be premedicated before any future transfusions

tylenol, benedryl or whatever his doctor orders

eve

March 4, 2008 at 2:58 pm in reply to: On This Date…… #20319

eve
Member

hi bill

i am so glad to hear that billy is doing so well and able to enjoy life as an active young boy should

eve

February 29, 2008 at 1:41 pm in reply to: pierre,s allogeneic blood and marrow transplant. #20316

eve
Member

gail

i am so sorry for your loss

may good memories help ease the pain

eve

February 18, 2008 at 4:41 am in reply to: Dacogen or Vidaza #20242

eve
Member

hi mary

my dad was never given more than 2 units at a time – after the 2 units they would give the blood time to settle in do a cbc and see if he needs more blood – the only time he needed more than 2 units was when he was hospitalized with an infection – at that time he got 4 units, but it was spaced over 2 1/2 days

eve

February 17, 2008 at 7:36 pm in reply to: Dacogen or Vidaza #20237

eve
Member

oops

if you have any other questions is what i meant to say

February 17, 2008 at 7:35 pm in reply to: Dacogen or Vidaza #20236

eve
Member

hi zeke

my father occasionally had blood in his urine – sometimes it was caused by a urinary tract infection and sometimes it was caused by kidney stones – dad was on vidaza and it really helped keep his transfusion needs to a minimum

if you have another questions i can help you with feel free to contact me

good luck
eve

February 13, 2008 at 3:34 am in reply to: Rough time for Dad #20211

eve
Member

whenever my dad had an infection and was hospitalized he always needed several rbc txs until they got his blood to a safe level – i would be more concerned with the infections than the number of txs needed

good luck
eve

February 9, 2008 at 7:52 pm in reply to: fever question #20197

eve
Member

glad you are better

eve

February 9, 2008 at 5:01 am in reply to: fever question #20193

eve
Member

dear zoe

please, please have it checked out asap – things can get out of control very quickly with mds patients as i saw with my dad

at 103 i would have had my dad in the emergency room

the motrin is just masking any symptoms – please don’t wait

good luck
eve

February 5, 2008 at 7:07 pm in reply to: starting transplant process #20180

eve
Member

tamie

hoping all goes well for your mom

eve

February 5, 2008 at 11:40 am in reply to: My Dad #18432

eve
Member

dear katie

my thoughts and prayers are with you and your family at this most difficult time

my dad passed away one year ago and there is not one day that goes bye the he is not in my thoughts

may all the good times you had with your dad live in your heart forever

eve

February 4, 2008 at 10:54 am in reply to: Starting Vidaza on 02/04/08 #20165

eve
Member

hi june

my dad never experienced any nausea – took anti nausea meds 1 hour after treatment as prescribed by his doctor
he probably would have been able to drive himself, but i went to every treatment with him-
the worst side effect he had was constipation – and that was from the anti nausea medication – he found out by trial and error that he could take less to the med and get the same results and doing that really helped – he also took some stool softeners and occasionally a laxative –

call me if you wish to talk and get any other info

good luck
eve
Author

Posts