Hi James:
Happy to hear Luspatercept is working for you.
I was dx with MDS RARS in 2006 when I was 56. TF dependent since 2009. Revlimid worked briefly back in 2010, Vidaza not so much in 2011.
I started Luspatercept in late April of this year, just had my 5th shot yesterday. No noticeable increase in HGB yet, although my WBC’s and Platelets have improved to normal range. MDS specialist told me this can take several months to work, so I am hanging in there, hoping for the best.
Some side effects that showed up after third shot are diarrhea, fatigue, dizziness when standing.
Thankfully, Medicare and my supplemental insurance have covered it so I don’t need to worry about that.
Best wishes for continued success!
Fran Boyle (Mrs.)