MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 4 posts - 1 through 4 (of 4 total)
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  • in reply to: Exhaustion #50264
    Patricia Shull
    Participant

    I get 3 shots per day for 5 days. I am exhausted almost constantly. Sometimes my heart sounds like it is bursting through my chest. My Hemoglobin is 8. My rbc 2.2 and wbc 1.0 I start my 4th cycle on Vidaza on Monday.

    I have learned to sit and rest as much as I am up and around. I lean on the kitchen island while preparing dinner. I sleep about 8-9 hours every night. About 3 months ago, I found that sleeping in an upright lounge chair gave me more energy in the morning. I have a designated sewing room with a TV where I can just sit and enjoy sewing.

    What I learned that has helped me most, is meditation. I breathe deeply and just tell my body that it is strong and healthy. I can almost do this in less than a minute. It gives me energy for some reason.

    My best aid, though, is a 53 year marriage to my almost sainted husband.

    Hang in there.

    ♥️Pat

    in reply to: New #50263
    Patricia Shull
    Participant

    Mer St Pierre

    Thank you for the upbeat news. Read your post 3 times just to feel better!

    I see my oncologist again on Monday, After bloodwork, and then back to Infusion Center.

    I’m being treated in Houston. We are taking a big hit with the Covid 19 virus Right now and I worry about possible infection. My husband, who received his last chemo for pancreatic cancer and I are laying low to avoid infection.

    Thanks for the encouragement. Sounds like you are going to beat this.

    ♥️Pat

    in reply to: New #50213
    Patricia Shull
    Participant

    Cliff

    My husband still has his from Pacreatic Cancer. He was one of the lucky ones. Still has to have it flushed every six weeks.

    Pat

    in reply to: New #50211
    Patricia Shull
    Participant

    Cliff

    Thanks for the info. My doctors are considering a port and IV for me too. I have nasty pain in my arms after injections for about 2 weeks. Gives me encouragement.

Viewing 4 posts - 1 through 4 (of 4 total)

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