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gemloyear
MemberBarbra, You have received so much good advice here that I don’t know if this will be worth while for you or not. My husband has been very ill this winter, I won’t go into that here, but he was prescibed an anti-fungal med; Nystatin which helped him, he used an oral dose which he swished in his mouth and swallowed.THere is also a cream for typicle use.If you would like more info on these meds go into Medline Plus –Drug information: Nystatin. Have you tried Ensure for him to drink, to give him some nurishment? I hope you are sucessful in cotacting your doc. It’s wonderful here on the forum where everyone is pulling for you and Ron,our prayers are with you.Ellie
MemberHI, My husband has itp as well as mds. when he first was diagnosed with the itp I went into a medline site and read that it may not be as serious in children and they can outgrow it. If you don’t find it I well go throu some of my print outs to see if I can find it. I hope the hemo can reasure you, praying for your daughter. Ellie
MemberHi Pam, I’m sorry that things havn’t worked out, but have faith that there will be another match for you. Praying for you, Ellie
MemberHi you guys whats the matter did you run out of steam or B.S.??? I really enjoyed your bantering, we all need a few laughs and crazyness. By the way that kimchee is great stuff, it’ll make you go places and do things, you should try it Tah it will help with the B,S.An Admirer
MemberWE are Mr & Mrs Crusty BubbleTush, The 3 kids are: Cheeseball Bubbletush ,Poopsie Bubbletush & Crusty Bubble Jr. I got at least 12 laughs out of that I’ll have to forward it to the grand kids. thanks for smiles we need them. Ellie
MemberI don’t think we were there in 2003, possibly in winter.We were in 2002, as my daughter worked there for a year.We met a fellow,retired dentist in New Orleans at a convention ,who was from PORTLAND.WE had a young air force dentist who lived with us for 2 years while station at our local air force base.His dad was a thorasic doc in Portland, the dr. we met in New Orleans knew both.We have met some interesting people while traveling. We took a trip to Washington state in 2002, to revisit the yakima valley where Glen’s family once lived.We went over to Portland, up the coast, and over to Vancouver, B.C. Beautful country. We miss traveling,but Glen’s doc told him not to drive any distance anymore since his stroke , so now we rely on our adult children to drive us when we take a trip. The travling gives us something to look forward to.We,are not ready to give up anything yet, we’re still young at heart. YOu will be amazed at the reults of your surgery.Best wishes. Ellie & Glen
MemberJimbob,My husband had one eye corrected 8 years ago nd didn’t need to wear glasses until recently. Still hasn’t needed to have the other done yet. Do you take any artheritis meds? My husband just started a new one, Arava it seems to help. the doc said it would probaley take about 4 weeks before it kicks in. He is still on prednisone and takes hydrocodone for pain. Good luck with the surgery and be sure to follow directions carefully. You will surely have eye strain from reading all your posts, have you got a magnifying glass? Take care Ellie
MemberTO Barbra & Ron, Thank you for your beautiful letter. It left me at aloss for words.I came across some info about mylotarg yesterday that you may have all ready read ,but will send it along in case you havn’t seen it. http;//users.rcn.com/jkimball.ma.ultranet/BiologyPages/C/CancerImmunotherapy.html you are both an inspration to us all,our prayers are with you Ellie
MemberHi GReg, It’s good to hear that your Mom is doing so well. Doe’s she use a nebulizer to help with the mucous., that with the meds really helps to loosen it up.Best wishes for her full recovery.Ellie
MemberHi Kate, I’m so glad that George is at home.WE hope that his counts stay stable for a long time.As you know ” there’s no place like home”.Our thoughts and prayers are with you. ELLIe & GLen
MemberNeil, I was sorry to hear of your mother’s passing. We pray that she is now at peace. She did her work well in raising such a good and caring son . Our thoughts are with you. Thank you for all the help you have been to us, you were a God send to us when we first came to this forum. Ellie & Glen
MemberHi , I had not heard of the MDS seminar in Cgo. Where did you receive the information from? I’m interested and would like to go if possible. Would you send more inf. on this site please? Thanks Ellie
MemberHi DOreen, Waiting to hear your good news from your docs. Even though my husband is to old for any type of transplant it’s great to hear that there is hope for the younger patients.Go for it!!! God Bless , Ellie
MemberDear Barbra, I was so sorry to read your post this morning. I guess I put too much hope in zarnestra,thinking that it was the new wonder drug. We will continue to pray for you and Ron. Ellie & Glen
MemberHi Suzzanne, Was happy to hear that the zarnestra has worked so well in your treatment. I hope this is our miracle drug of the future. I pray that you will remain in remission. Ellie & Glen
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