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Hope RuizParticipant
Hi Michael,
Just like you I left everything to be with my grandfather. We got to celebrate his 90th birthday February 27. He has been feeling ill for over a month. He was asleep more than he was awake and needed blood transfusions every other week. Days before his birthday he was getting back pain. Monday after his birthday weekend which was this past Monday, he fell.My grandpa struggled to walk and on Thursday he couldn’t move. My dad, Mom and I had to carry him to take him to his bed.
These past few days have been the hardest for me and my family. Thursday was also the last day he has anything in his stomach as far as food. My grandpa has given up at this point.
He’s leaving me soon. All I can say is that he’s been in so much pain his whole lower body. He declined hospice. He told us we had to obey his wishes. It hurts so much to see him in agony. Everyday hour I see my grandpa reaching death closer and closer.
He prayed with me yesterday for the last time which was something we always did together.Last night his hands, feet and legs were super cold and his hands are turning purple. I know the end is near.
All I can advice is to tell him everything now while he is coherent. My grandpa and I talked already. It was beautiful and heart breaking and he told me out of all of his grandchildren I never left his side. They know and they are grateful for everything we did for them.
I’m glad I quit my jobs this last year of his life so I can take care of him and cherish every moment together.I will be praying for you and him as I know exactly what you’re going through. Don’t hesitate to reach out to me.
Esperanza
Hope RuizParticipantHi everyone,
My grandpa (89 turns 90 next month) has been suffering from MDS since 2019. He was on Dacogen for 1 year. Dacogen didn’t seem to help towards the last months. Now he gets monthly transfusions. Every month he seems to get worse. He gets weaker by the minute. The last couple of months all he wants to do is sleep. He’s only awake for a couple of hours. On Tuesday, we saw his hematologist and he told us that there is nothing we can do for him anymore. We have to options, get him into hospice or to continue transfusions as he needs them until the disease runs it’s course. All he said he may have days, weeks,
Months because this disease is so unpredictable. I’m beginning to think that this is the last stage of this disease. I’m cherishing every moment I have with him and thank God everyday he wakes up.If any of you would like to connect, please email me. Eruiz_91@icloud.com
May God gives us strength with this journey we’re all going through.
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