MDS is a bone marrow failure disorder
MDS is a blood cancer
Learn More >

Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

Forum Replies Created

Viewing 3 posts - 1 through 3 (of 3 total)
  • Author
    Posts
  • August 25, 2020 at 9:01 am in reply to: Luspatercept #52721
    James McQueen
    Participant

    Bob: I have ringed sideroblasts at >15%.

    August 24, 2020 at 2:38 pm in reply to: Luspatercept #52716
    James McQueen
    Participant

    Had my third injection of luspatercept today. Hgb continues to improve. Todays result was 11.1g/dL. Up from 8.2 just six weeks ago. Dosage for todays injection was reduced to 80% of normal due to increase in Hgb. Feeling less tired than usual.

    August 3, 2020 at 2:49 pm in reply to: Luspatercept #52620
    James McQueen
    Participant

    I was diagnosed with MDS-MLD-RS about two years ago. Started treatment with Procrit without success followed by Vidaza which helped for 18 months without need for transfusions. Then the Vidaza treatments began to fail and transfusions were required to maintain Hgb above 8.0. Had my first injection of luspatercept on July 13,20. One week later on 7/20/20 my Hgb had increased to 8.9 with no noticeable side effects from the injection. On 8/3/20 my Hgb had increased to 9.7 and I received my second shot of luspatercept. So far so good.
    Jim M.

  • Author
    Posts
Viewing 3 posts - 1 through 3 (of 3 total)

Login

Login

Search Forums

Recent Topics

Message Board
Review answers to commonly asked questions or get answers to your questions from an MDS expert
Enter Message Board

CONTACT US

MEMBER OF

Guidestar
Copyright 2014 - 2024 - MDS Foundation. All Rights Reserved