[Rich Andrews]

Hi Mary, for what it’s worth, I found a list of foods that may boost your hubby’s platelets. So far, mine are fine but my RBC is dropping.
FRESH MILK
BROCCOLI
CARROTS
RAISINS
POMEGRANATE
LEAN MEATS
BEANS
GARLIC
Good luck!

[Rich Andrews]

There are different forms of MDS. Mine is a DNA mutation, called del 5q and Revlimid (lenalidomide) for some reason kills these mutated bone marrow cells, leaving healthy marrow cells intact. It has worked for me for almost 2 years but seems to be failing recently. Will be asking my hem-onc about it. Thanks for the reference.

[Rich Andrews]

yes, was told 18 – 24 months maximum. HGB down to 9.2 – i guess vidaza injections are next. good luck.

[Rich Andrews]

revlimid is probably not working that well for me, after almost 2 years. had to stop when a body-wide rash developed. then renewed, taking 5 mg every other day. boosted HMG to 10.5 a few months ago, but latest test is 9.2 and that ain’t good. taking 5mg 2 days on, 1 day off, to avoid rash. will see if that works. scared out of my wits. i have prostate cancer also. 73 yrs old, otherwise doing ok. no pain, can exercise, walk around supermarkets, self-sufficient but see hard times ahead. cancer sucks.

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