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KAREN WITMERParticipant
I had a lot of GI issues and finally saw the gastroenterologist
. He said try the FODMAP diet ( IBS diet, you can look it up and there are books). It worked! My hematologist did not know to tell me this. Also, this is just my theory but I think taking a lot of antacids etc might reduce the effectiveness of the Revlimid. I have been feeling well and taking Rev for a year and a half @ 5 mg 21 days a month. My doctor didn’t want me to stop the rev despite the discomfort I was having. I hope this helps and that he will feel better.KAREN WITMERParticipantboth BMBs were done in the hospital outpatient department under IV sedation. no pain. I had a choice and chose to be sedated. I tolerate pain pretty well, but was very nervous. this is what I strongly recommend.
KAREN WITMERParticipantMy gastroenterologist suggested the FODMAP diet for GI issues on Revlimid and it worked. He suggested the University of Michigan website and later I downloaded a free app. I wish my oncologist had known this so I didn’t have to suffer for months. My Revlimid is working well at 11 month in. I had a DVT about 5 months ago so I’m taking Eliquis.
KAREN WITMERParticipantI had severe stomach bloating and pain when I stared Revlimid. I have been taking Metamucil pills which helps with consipation. I finally got into see the gastroenterologist and he suggested the FODMAP diet, which is for IBS. It worked for the gas and discomfort.I don’t know if it will help with your problem but is worth a try.There are many websites with this diet explained. My doctor recommended the University of Michigan one.
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