I am from France. In 2011 I have been diagnose a low risk MDS. Until last january, things did not change much ,just a low decay in the numbers of red blood, white blood cells and platelets.
In early january I had my first RC transfusion. Then everything stated to accelerate and the doctors started to speak about hematopoietic stem cells transplant… I was so afraid at first that I did not know if I aws strong enough to handle it.
Doctors convainced me that it was the only to expect a cure…
They started to fine a donnor compatible. As it took some time I had a first round of vidaza.
then came the good news: I had a donnor 100% compatible.
I entered the hospital on june 15th, and got the transplant on june 24th. Everything went very well, so well taht I left the hospital on july 13th!
I am now at home, recovering. Of course I visit the day hospital twice a week. Yesterday, I had an important visit as it was D + 30 after the transplant. I had a myelogram done.
My family suggested that I should write a small blog to help me during these difficults times. Here is the address:
https://ppmhk.wordpress.com (it is in English).
All the best.
