Carrie's Replies | MDS Foundation

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January 20, 2005 at 2:46 pm in reply to: Fever after Vidaza? #3452

Carrie
Member

Andrea,

My dad had a 100 degree fever the other day but it went down. He’s at his lowest point after the Vidaza. They gave him two units of blood and some platelets. They didn’t have to hospitalize him. Just took some blood and urine for cultures.

Hope your mom is doing well.
Carrie

January 20, 2005 at 2:43 pm in reply to: Update (dad and me) #3427

Carrie
Member

Thanks for the support, everyone. I’ll consider all of your suggestions and talk to my mom about them.

About the HELOC, I already have a HELOC (I had 80/20 financing) and my HELOC is maxed . Yikes!

If things get bad, I’ll look at the value of the house and see what I can do.

I feel better today. Just 4 days of sadness so I guess I’m not sinking into clinical depression.

Dad’s fever was gone yesterday morning and the cultures were good. He just has to go back for blood work on Friday. That makes me feel better, too. We’ll just take it day by day.

Love,
Carrie

January 19, 2005 at 7:44 pm in reply to: Update (dad and me) #3423

Carrie
Member

Jimbob,

That’s what I’m thinking, too. Either way, I don’t want to go behind his back unless I know for sure that he’ll appreciate it.

Thanks for your insight,
Carrie

January 19, 2005 at 4:17 pm in reply to: Update (dad and me) #3421

Carrie
Member

Thanks JimBob and Jody. It’s nice to have affirmation that I’m not going crazy.

JimBob, I didn’t mention that they are looking into a grant for the extra money. Mom has to file paperwork and provide her financial information. See what I mean? I’m being so pessimistic that I didn’t consider that there’s another option. Thank you for reminding me.

Also, when dad had his SCT for his NHL about 5 years ago, his friends held a benefit for him. But dad hasn’t been in touch with them for a long time and mom says that they don’t want to tell them and get them involved. I also get really frustrated that they’re stubborn about certain things. I don’t understand it… . I am considering contacting his friends on my own. He needs support and I think he’s just not comfortable asking for help after not talking to them for so long.

I guess I’m just having a rough go of it for now… I’ll be better soon.

Love,
Carrie

January 18, 2005 at 3:46 pm in reply to: Vidaza has nearly killed my Dad #3361

Carrie
Member

Sarah9,

I’m sorry to hear about your dad. I hope that he gets through this. I’m adding him to my prayers.

Carrie

January 18, 2005 at 3:45 pm in reply to: My BMT #3374

Carrie
Member

Marsha,

I’m so glad to hear that your BMT is over and that you’re building strength again. I know it was rough but this just proves that our bodies can rebound.

I hope things keep going well for you. Welcome back. We have a lot of new people (me included).

Carrie

January 18, 2005 at 3:41 pm in reply to: Hello.I'm back!! #3355

Carrie
Member

Glad you’re feeling happier . We all have rough days. I’m having them now . But it’s nice to have a support group.

January 14, 2005 at 6:41 pm in reply to: Dad is in the hospital (my heart is broke) #3215

Carrie
Member

He’s so young. I’m praying for a miracle, too.

January 14, 2005 at 3:23 pm in reply to: The waiting game has started #3052

Carrie
Member

I pray for comfort for your family.

January 13, 2005 at 2:26 pm in reply to: Secondary MDS #3182

Carrie
Member

Kathy,

My dad had many treatments (CHOP, auto-SCT, Rituxan) in a period between August 1994 (he was diagnosed NHL in June) and January 2003. After his last Rituxan, it was about a year and a half of no treatments before he was diagnosed with sMDS.

From what I’ve read, there may be a correlation between the SCT and MDS. Some people who survive the SCT and for 5 years appear to be getting MDS. I’m not sure if it’s just the SCT or if it’s because of the CHOP he got when he started.

So… basically from start of treatments for NHL to diagnosis with MDS was about 10 years. All of my dad’s data is probably more confusing than helpful but I hope it helps some way.

Carrie

January 11, 2005 at 9:53 pm in reply to: some good news….yeah! #3102

Carrie
Member

Yay for your mom!!!!!!

January 11, 2005 at 2:49 pm in reply to: The waiting game has started #3039

Carrie
Member

April,

Thanks for the update. Sorry things are so tough. I will also pray for peace for your husband, you, and your family.

Carrie

January 11, 2005 at 2:44 pm in reply to: Dad started his Vidaza today #2622

Carrie
Member

Thanks for the info, Christina. So I guess my dad’s counts will start going down around Monday (17th). I’ll be on pins and needles until the come back up. I hope he doesn’t need transfusions like your father did. Ugh.

January 11, 2005 at 2:38 pm in reply to: Vidaza reaction? Is this normal? #3061

Carrie
Member

Christina,

My father felt that way during the 7 days of treatments (actually more at the end). He had a transfusion on Tuesday, too.

This is his first treatment so he hasn’t hit the low yet. I’m really worried that the counts won’t come back up after they go down.

Oh, and yes, they’re checking his counts weekly.

Carrie

January 10, 2005 at 5:29 pm in reply to: Vidaza reaction? Is this normal? #3059

Carrie
Member

Okay, I’m glad to hear that it’s not unusual. I’m not there to see him but my sister was very worried about him.
He was pale at Christmas anyway.
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