[Charles Hall]

Hi, I’ve been on Vida a for 7 months. My platelets are low. Sometime going as low as 5. At present I am getting 2 units of platelets weekly. Approx e dry 2 weeks I add 1 unit of prbc’s. My blast level has been reduced from 21% to 3% but I’ve seen no change in my transfusion requirements. I am confused about your statement about something will keep growing and the correlation to low platelets. Wish I could help more.

[Charles Hall]

I was dx about 4 yrs ago. Started procrit every other week at 10,000 units. I now self inject 5,000 units 3 day a week. If I go above 10,000 at one time my BP goes up like a rocket. It went as high as 220/110 and I had what is called an eye stroke. So the lower self administered dose was the solution for me. MDS is a strange disease. I was using price If to control hgb worked fine but recently it started going higher >11 and my platelets began decreasing. Presently I no longer do procrit but need platelet xfusion of 2 units once a week. Today’s hgb was 10.8 and if it drops to 10.7 I’ll restart the procrit.
I’m hoping I see an improvement with vidaza on all blood counts

[Charles Hall]

I’ll be starting vidaza on Monday for 5 days M-F then repeat in 3 weeks

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