[Lee Smith]

Thanks to everyone for the replies and feedback. It really helps. Just found out today I will be starting treatment on Tuesday the 21rst. I guess the shocker was my doctor’s PA who called me said it would be Decitabine and not Azacitidine. I think part of that was me when I told my doctor I would prefer the oral pill version. Then after speaking with several people they said the pill version would be rougher on my liver (could be wrong) so I called back and said I was fine with the IV. Have not read anywhere on here about Decitabine. From what I have read it basically is the same as Azacitidine but a newer version. I like that it is a 5 day cycle rather than a 7 day cycle and the PA said I could switch to the oral version anytime. Thanks for all the feedback on the Azacitidine but has anyone had experience with Decitabine?

[Lee Smith]

Thank you all so much for the replies. Still waiting on the final biopsy report and what the next step will be. My specialist is at a “Center of Excellence” for MDS, one of 4 “Centers of Excellence” in North Carolina where I am from. I have friends, and my wife agrees with them, who want me to get a second opinion from “The Cancer Centers of America”. The nearest one to me is 6 hours away in Atlanta. I have heard great things from people treated by them including a friend but it seems this cancer like all blood cancers the treatment is pretty much the same and I think I would prefer to be closer to home during those treatments.

[Lee Smith]

I had COVID back in November of 2020 (tested positive right before Thanksgiving) and my only symptoms was losing since of taste and smell for a few days and feeling a little fatigue. Heck I ran 5 to 6 miles a day while in quarantine with it. Held off on getting the vaccine because COVID had very little effect on me and I had the antibodies but going to get my 1rst dose tomorrow because I just recently was diagnosed with MDS and my doctor wants me vaccinated before beginning treatment.

[Author]

Posts