MDS is a bone marrow failure disorder
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • June 4, 2023 at 9:57 am in reply to: Inqovi #63228
    Lynn Minnis
    Participant

    My MDS journey has reached an end. I was initially diagnosed in Nov. 2018 and started on Revlimid. When that was no longer effective, I started Inqovi every 28 days and went to every 5 weeks in late 2022. My last dose was March of 2023 and my numbers tanked at my April check-in. A bone marrow biopsy revealed Acute Myeloid Leukemia and the prognosis is not very promising. Still in the testing phase to find an appropriate treatment. Hoping to hear more this week.
    Thanks for answering my post. Good Luck with your treatment.

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