MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • in reply to: INQOVI #58804
    mk thompson
    Participant

    New doctor going to start this drug whenever the special pharmacy sends to
    Me. Am scared of side effects since the Aransep caused me to have a stroke. Previous doc didn’t pay attention to my family medical history of strokes. Now I have another issue to be worrying about.

    in reply to: Bruising #58415
    mk thompson
    Participant

    Blood thinners cause a lot of my bruising, but it is annoying. My Dermatologist recommended Arnicare to sooth the bruises. However talk to your hemoc doc to get his or her opinion. Good luck, I can rarely get through to my hemoc doc because of the size of the clinic. It is 2 docs and 2 RNs and 8 receptionists.

    in reply to: blood ratios and symptoms #58411
    mk thompson
    Participant

    Good luck on the trial.

    in reply to: Aransep use for MDS #49400
    mk thompson
    Participant

    This is my mk thompson posting in 2017. Still no resolve.

    in reply to: Did anyone get better after diagnosis? #49399
    mk thompson
    Participant

    Have been on aransep for 4 years. CBC is done every 3 to 4 weeks, depending on doctor seen at the time. HGB hangs at 9 -10. Tired and achy all the time even with the aransep. What else is out there? Am not enthused with this doc as she says, “every thing looks okay.” I go to a military hospital for this civilian doc, and she only comes to clinic sporadically as the military is short of doctors and congress will not fund more care for military…Cutting back 18,000 medical personnel this year!! Tricare has a cap on “cancer” care which this is tagged under. Suggestions???

Viewing 5 posts - 1 through 5 (of 5 total)

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