MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 15 posts - 1 through 15 (of 216 total)
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  • in reply to: My heart is breaking. #17774
    Caroline
    Member

    Campbell,

    Please accept my condolences on the loss of your precious husband. I will continue to keep you in my prayers.

    Blessings,
    Caroline

    in reply to: Some things I learned….. #17785
    Caroline
    Member

    Patti.

    Thank you for EVERYTHING.

    You learned alot. You shared alot even when it was toughest.

    Blessings,
    Caroline

    in reply to: Mom is done with Hospice home with God #17795
    Caroline
    Member

    Jan,

    I am so sorry that you lost your Mom.

    She has made it home now and will take care of you from above until you can be together again.

    My thoughts and prayers are with you.

    Blessings,
    Caroline

    in reply to: My heart is breaking. #17762
    Caroline
    Member

    Hi Campbell,

    I am very sorry that you all have to go through this. You did all that you could for your husband. It is natural to go back and wonder just what we could have done differently.

    I will continue to keep you in my prayers.

    Blessings,
    Caroline

    in reply to: Sometimes it just helps to share the burden…. #17647
    Caroline
    Member

    Patti,

    Please accept my condolences. You have been a model daughter-in-law and a great friend to your Mom. You did all that you could and then some over the past years. She knew that and will smile down on you as she helps you in the coming years.

    My prayers are with you and your family. The next chapter of your life is opening up now and I’ll pray that things go smoothly as you take in your sister-in-law. She is obviously in excellent hands.

    Blessings,
    Caroline

    in reply to: Sometimes it just helps to share the burden…. #17634
    Caroline
    Member

    Patti,

    You have alot of friends praying to help keep you strong and to help your MIL pass onto Glory comfortably. Also to help your new responsibility as guardian for your SIL to begin smoothly.

    Blessings,
    Caroline

    in reply to: passed on #17668
    Caroline
    Member

    Gail.

    Please accept my condolences. I will keep you in my prayers.

    Blessings,
    Caroline

    in reply to: Sometimes it just helps to share the burden…. #17612
    Caroline
    Member

    Patti.

    It has been a long fight for all of you. The time that you spent finding alternate methods to help your Mom to gain extra time above what the doctors recommended was well worth it. You had more time to enjoy each other and to make plans for the next phase in your lives. Your adjustments will not be easy for any of you. Your faith has helped you to get through the past few years and it will continue to do so. You will be separated from your Mom for awhile but you know that it is only temporary and you will all be together again soon.

    My prayers and friendship will be with you as you go through the next months. The Peace of Christ will be with you to guide the way.

    Blessings,
    Caroline

    in reply to: SCT #17356
    Caroline
    Member

    Stephanie.

    I am sorry for your loss. You all fought hard with and for her. My prayers are with all of you as you go throught the next week.

    Blessings,
    Caroline

    in reply to: 3 Years Today! #17264
    Caroline
    Member

    Wonderful !!! Wonderful !!!

    Many, Many more years Billy !!!

    Blessings,
    Caroline

    in reply to: Butch Ashley #17306
    Caroline
    Member

    Butch,

    Best wishes for much success with Ashley’s transplant.

    Blessings,
    Caroline

    in reply to: I ask you for a prayer… #17207
    Caroline
    Member

    Aleksandra,

    I will keep you and your Mom in my prayers.

    Blessings,
    Caroline

    in reply to: My dad #17165
    Caroline
    Member

    Dear KWJ,

    I am sorry for your loss. I will continue to keep you in my prayers.

    Blessings,
    Caroline

    in reply to: Results from Aranesp? How long? #17125
    Caroline
    Member

    Josey.

    My Dad saw results after his first shot of Aranesp. He received 150 units. His hemoglobin went from 100 to 148. That was too fast and too high an increase for his heart. As the hemoglobin count rises, the blood becomes thicker and stickier. Therefore, the heart has to work harder to pump the thicker blood. Dad went 3 months shot-free to let his hemoglobin drop again and then began 80 units once a week. Again, his hemoglobin went from 100 to 140. Weekly shots were too much for him. He got another break from shots until his hemoblobin dropped to 120. That is where his Oncologist wants to see his hemoglobin stay. Now I give him a shot once a month. He gets 80 units per shot. His gemoblobin is usually 120 when I give him the shot. It rises to 140 or so and it takes a month to drop back down to 120. So far he feels good and has some energy.

    As far as your nosebleeds…even though it is practically impossible in this society…TRY to avoid stressful situations. The last thing you need is to lose blood.

    Blessings,
    Caroline

    Caroline

    in reply to: My Daddy has pased away #17106
    Caroline
    Member

    Karen.

    I am sorry for the loss of your Dad. My prayers are with you a this time.

    To all of you who are suffering losses and To you who are sick or have sick loves ones….My prayers are with you all also.

    Caroline

Viewing 15 posts - 1 through 15 (of 216 total)

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