[namllits2002]

I posted my preliminary results when I started treatment with Reblozyl in October. Since then my hemoglobin and WBC and RBC have been elevated from administration of the drug. I am working closely with Moffitt Hosp, and they have guided my treatment. They indicated that overall success is defined at hemoglobin great than 9, but I have not reached that level yet. The results so far have kept me off of blood transfusions, which was my goal in starting treatment. Moffitt has recommended increasing the dose at intervals covered in the Dosage Recommendations, and I am now at 1.33 mg/kg dose from 1.00 mg/kg. My next injection will increase the dose to 1/75 mg/kg in hopes that I can reach the target hemoglobin level. If I do not reach the hemoglobin goal, Moffitt reports that there are studies on the way combining Reblozyl with Procrit and other treatments to see if a synergistic effects occurs. And, there are other drugs being tested for MDS. For me, I have had no side effects from Reblozyl other than fatigue, so I am lucky in that regard.

The clinical trials with Reblozyl demonstrated a 50% success rate, so it is expected that as results come in from treatment, the success will also be about 50%.

Hope this update proves helpful, and my best advice is to research the drug extensively and become an ACTIVE participant in your therapy.

[namllits2002]

See my post on “Incredible Drug – Reblozyl” – explains my experience as to results and cost issues.

[namllits2002]

If you are low risk, with ringed sideroblasts confirmed by biopsy, and are being considered for treatment with Reblozyl, Calgene has a Patient Support site. If you are less than 8 times the poverty level, they will probably approve you for free drug, so worth a submission – requires your doc requesting prior approval to treat you with it, and submission of all your finances.

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