MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • December 2, 2020 at 10:51 pm in reply to: How many units of blood? #53731
    Nick A
    Participant

    Thanks, Kathy, for sharing. My mom is in palliative now, but we are looking at the hospice for her. The disease is tough since the person talks and does everything well, but you know it is not working.
    I wish you the best. Thank you

    November 29, 2020 at 7:08 pm in reply to: How many units of blood? #53686
    Nick A
    Participant

    Thank you! I will look into the Center of Excellence. My mom has low MDS risk with increased T cells (62%) per her bone marrow report.

    Thanks for such a detailed response. It sure helps as I am trying to understand all these things.

    Nick

    November 29, 2020 at 4:03 pm in reply to: How many units of blood? #53683
    Nick A
    Participant

    Thank you, Pat. My mom has those same symptoms. Can you tell me how many units does he get each time now?
    I wish your husband the best. It is a tough time. I have an appt with the doctor Tuesday.

    The sad thing is my doctor is also recommending hospice considering her age.

    Many thanks again
    Nick

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