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Viewing 5 posts - 1 through 5 (of 5 total)
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  • November 29, 2019 at 10:38 pm in reply to: MDS to AML question ?? #49772
    Pam Grillo
    Participant

    It sounds off to us too. I’ve been thinking about getting a second opinion as well and will see what she thinks about doing that. We have an appointment with her family Doctor at the beginning of next week and he’s the one who had to break the news to us (he got a call from the Hematologist after the blood test results) anyway, he also doesn’t think she has the symptoms that should go along with this diagnosis although he does say that he is not an expert in MDS/AML. The nearest Center of Excellence is 1600 km away and I’m not sure how to even go about getting an appointment there but might try looking into this. Thank you for your support.

    November 6, 2019 at 9:32 pm in reply to: How long did it take for Vidaza to work for you? #49370
    Pam Grillo
    Participant

    Owen: Wow, 34 cycles !!Thank you for sharing your experience. I’m glad your numbers are holding for you, I hope it continues.

    November 5, 2019 at 8:32 pm in reply to: How long did it take for Vidaza to work for you? #49363
    Pam Grillo
    Participant

    Denise, that is very common and even expected during the first two cycles especially. The hope is that they will start to rise by 4th-6th cycle. Kathy, what was the other treatment that you tried besides Vidaza? How long were you on it?

    November 1, 2019 at 10:13 pm in reply to: How long did it take for Vidaza to work for you? #49320
    Pam Grillo
    Participant

    Thanks James for sharing. Good luck !

    October 31, 2019 at 9:39 pm in reply to: How long did it take for Vidaza to work for you? #49311
    Pam Grillo
    Participant

    Thanks Kathy for sharing your experience. I hope you have good results from your biopsy. Good Luck !

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