Forum Replies Created
-
AuthorPosts
-
ppn2018Participant
Let me add to my post of 18 April.
I had gone to no alcohol of any kind in the second half of March:
ALL measures in CBC went UP to new highs.
So, in all of April, I continued with no alcohol:
Almost ALL measures in CBC went DOWN very much – so disappointing.
Now, for all of May, I am on a 35 mL/day of white wine only.
I will keep you posted.
I have detailed charts, available via email request.
But, first, I need to checkout security of emails.
ppn2018ppn2018ParticipantJudith Barnes:
[Perhaps there is some confusion with the title on your post and the contents.
See my reply about Lisinopril and Amlodipine.
As for MDS-MLD, I am now on “Wait and Monitor” regimen.
My advice: BE YOUR OWN BEST ADVOCATE!Ti WILL BE
AT THE MDS-fOUNDATION MEETING IN NASHVILLE ON THURSDAY.
ppnSeptember 15, 2019 at 3:11 pm in reply to: Survey: How many MDS patients on high blood pressure meds #48850ppn2018ParticipantI have been on Lisinopril since 1996, and Amlodipine since 1999.
In April 2018 I had a tumor, and partial colectomy.
Infusion of Xeloda was done once only: my platelets went down to 29!
Oncology treatment was delayed, eventually had oral oncology for 6 months,
1 week on, 1 week off; with weekly CBC and monthly comprehensive.
C-T scans were very good.
In August 2018 I was diagnosed with MDS-MLD
I got to these conditions:
very low WBC, around 3.0 increasing very slowly;
low RBC, around 4.1 increasing slowly;
low platelet count, around 60, steady
HGb is now above minimum, rising slowly.
low Lymphocytes, about 700. rising slowly
Neutrophiles above minimum, rising slowly
After oncology treatment, I started “Wait and Monitor” regimen: monthly CBC.
I HAVE CHARTED EVERYTHING; WE MUST BE OUR OWN BEST ADVOCATE.
I hope this helps.
QUESTION: IS ANY ONE LOGGING THESE RESPONSES? -
AuthorPosts