[Richard Carlsen]

Brian
Is the Doctor your father is seeing attached to one of the MDS centers of excellence ? Elsewhere on this site you can find a listing of them.
Remember, you can always seek a second opinion if you are not comfortable with your father’s current Doctor.

Best of luck

[Richard Carlsen]

Meant High Risk. Also , agree with the people that have suggested using sedation for BMB. I requested and I’m glad I did.

[Richard Carlsen]

Was scared as well have “ night risk “ MDS which affected Hemoglobin and White Blood Cells. Got through a round of Azacitadine, and had no real side effects.
Did unfortunately get an infection in one of the IV lines that they used for chemo.
Was in the hospital with that for a couple of weeks.
All in all the disease is experienced differently by different people. Don’ t pre judge. Things could always be worse.

[Author]

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