MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 5 posts - 1 through 5 (of 5 total)
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  • in reply to: Wondering….dizziness #48691
    sheri
    Participant

    I have seen this Dr she is very thorough. I am sure you have your answers by now. Hope everything is going well. I too suffer from vertigo. Sometime its lasts for days and I stay home and can’t drive. Doc’s won’t say what it’s from. I have low risk MDS which affects my RBC. I also have A-fib.

    in reply to: mds 5q-: does revlimid stop working #48690
    sheri
    Participant

    My Doc told me it does stop working but she said maybe 3 years. Everyone is different so it could be. How do you feel one this drug. She wants me to go on it but I feel the side effects don’t out weigh the benefits. Right now I am so tired .

    in reply to: Fatigue and tiredness in MDS #48688
    sheri
    Participant

    I live with a RBC around 8.4 and I am exhausted. When I have a transfusion which has been about every 6 months for the last 2 years. It goes up to 9+ and I feel so much better but am still tired. I just don’t get so out of breath like when it was low. I find it hard to catch my breath when I do any exertion.

    in reply to: Medicare #47419
    sheri
    Participant

    That is what I have and so far has covered most of my bills. Never went to a center of excellence though.

    in reply to: Medicare #47418
    sheri
    Participant

    That is what I have and so far has covered most of my bills. Never went to a center of excellence though.

Viewing 5 posts - 1 through 5 (of 5 total)

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