MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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  • in reply to: Just got diagnosis a few days ago #52353
    Cheryl Snyder
    Participant

    Mark,
    By now you probably have a bit more info. I was diagnosed last sept 2019. after a routine blood test, I was sent for a bone marrow biopsy. I am 67 year old female, and was a regular cyclist …. while not a slow poke cyclist Not the strongest but did experience more and more fatigue…… I still ride as much as I can but not at the same level. I am being seen by a hematologist at Duke(NC). He is saying while I feel good and my blood levels don’t drop to much he suggested watch and wait. I feel asymptotic….. few weird issues, bruising and bleed easier than before.
    This is a weird “syndrome” that, I think, effects everyone differently. And I am not sure all dr’s agree with each other. Continue to do what you can while you can and eat well and live your life. Sorry you’ve joined this mds club. And my drs have told me very little in what to expect. So a lot of online reading.
    Cheryl

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