[Tom Barlows]

Stacey, they started me on 5omg daily , had rash and itching bad. Took me off. Going to recommend your treatment to them.

[Tom Barlows]

Stacey, How many MG is your Revlimid capsule?

[Tom Barlows]

Thank you for the information, sounds like he is in a fight, sorry.

My treatment is using Dacogin get 4 days tranfusions, 4 weeks off.

Also, include steroid for comfort.
Test blood weekly if hemoglobin less then 10 get a redicrit injection.

Seems to only stabilize counts, red, White and platelets still very low.
Platelets seem to be the biggest problem recently. I have had a couple transfusions.

I have had 18 mos treatments so far.

Recently applied to city of hope in Duarte,CA for 2nd opinion.

Good luck.

[Tom Barlows]

My goodness i feel so sorry for your wife so much to deal with at 45 years 🙁 I am 78.

My treatment is using Dacogin get 4 days tranfusions, 4 weeks off.
Also, include steroid for comfort.
Test blood weekly if hemoglobin less then 10 get a redicrit injection.

Seems to only stabilize counts, red. White and platelets still very low.

Treatments so far 18 months. Recently applied to city of hope in Duarte,CA for 2nd opinion.

Good luck to your wife !!

[Tom Barlows]

get 4 days injections, 4 weeks off.
Also, include steroid for comfort.
Test blood weekly if hemoglobin less then 10 get redicrit injection.

I also have a hard time breathing with little exercise. Especially if hemoglobin goes much below 8.

Seems to only stabilize counts, red. White and platelets still very low.

Treatments so far 18 months. Recently applied to city of hope in Duarte,CA for 2nd opinion.

[Tom Barlows]

I get 4 days injections, 4 weeks off.
Also, include steroid for comfort.
Test blood weekly if hemoglobin less then 10 get redicrit injection.

Seems to only stabilize counts, red. White and platelets still very low.

Treatments so far 18 months. Recently applied to city of hope in Duarte,CA for 2nd opinion.

[Author]

Posts