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Terri
MemberGreat Idea, seems everyone is catching on
MemberCan’t answer your questions unfortunately, But know that you have support and prayers here.
Hope your Dad is wellMemberVance it is wonderful to hear this good news, Continued prayers for Ruby
MemberActually the injections are what they call SUBQ, just below the skin not in to the muscle or vein.
MemberDon;t Look while they are sticking you, and just keep your looking forward. And think of all the good you are doing. I try to donate as much as possible. the Blood mobile stops at our church rather frequently.
Make sure you eat before you go
MemberEve, Does your Dad’s Hemo ever look at smears on slides of his blood. Every month when we see the doctor they pull extra tube of blood to do the smears so that the doc can see any abnormal cells. In Oct when we went and Bobs whites were up to 20 (they were normal but gradullay kept going up) he looked at the smear and did see some abnormal cells and that is when he decided on another BMB and we found Bob’s blast up again in the marrow so he started the Vidaza again. He has been on antibiotics as well
Whites do go up when you are ill and fighting off an infection I would monitor and when is your dads next visit or CBC,
MemberBrian, We contacted a Nutritionist in conjunction with our Local Hemo. Originally when we went to Center of Exc the doctor there said just supportive care which was like your dad. But our local doctor started Bob on the Vidaza (Prior to its approval by the FDA). Its a form of chemo. In conjunction with this the nurtrionist has BOb taking vitamins and supplements to boost the Immune system and help with the counts. I have to say bob is transfusion Free for a year, counts are stable considering. The WBC a little high, reds normal and Hgb hangs in between 10 and 11. This week 11.3. Plts low but no bleeding problems. Bobs blast were 14% this past Oct with the Latest Bone Marrow biopsy and now he will be starting his third round of Vidaza to help bring them down.
He is also on an antibiotic.MemberAlexa, We all are where you are at some point in our life and dealing with this disease. This is the right place to vent and to find support. I hope tomorrow brings back your smile,
God Bless youMemberCarrie, My husband is on his second go around with the Vidaza, completed 6 months last April and it got his Blast down in the Marrow to Normal. His counts were pretty stable for 7 months. His Whites started rising and so did the blast. Doc did a BMB and started him back on the Vidaza, So far its been ok. Bobs counts are holding.
One suggestion to all I would talk to your Doctor or a Nutritionist about Vitamins to Boost the Immune system during the treatment. OUr Hemotologist also has Bob on Levaquin an antibiotic.MemberWHen Bob was first dx and they did the initial BMB they ran the test for the abnormal chrom and He did not have any (Can’t remember which One) but the dr said they ruled out the CML. OUr Dr also said like Barbra, CML there are more drugs
WHen Bob’s WBC go up his blast go up and thats when our Dr put him back on the Vidaza so he would not trans to AML.
Prayers are with you PamMemberDawn, Our Hemotologist does not keep us in the dark about anything, He pulls no punches. He answers all our questions honestly. One night Many many months ago Bob was running temp and I could not get it down it was Midnight and after. I called the Doc three times and three times he called back. Sounded like I kept waking him up but that is what is so great about him. He makes time for his patients.
MemberGood Idea that way not repeating it
MemberBob goes once a week for cbc and procrit. Especially now that he is getting vidaza they especially want the weekly cbc
MemberHilda I am sorry you and your family are going through this, I am sure you will find some answers here. My husband is 59 and he has his aches and pains but Don’t really think they are so related to the MDS. He has been transfusion free for over a year.
Prayers are with youMemberI think aransep… is like Procrit just administered a little differently, MY husband gets weekly shots of Procrit and it does take a little bit for it to start working. Also WIth the Procrit your iron level has to be normal to help it work. Sorry do not have any experience with aransep… . I wish your Dad well
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