Forum Replies Created
-
AuthorPosts
-
William Eagle
ParticipantI’ve taken Procrit (with some improvement) now combined with VIDAZA. There was minor improvement with Procrit, but Vidaza has made a big difference with all blood counts being boosted…I may be heading for a donor-driven transplant — and the goal I think is to get my counts as high as possible before that happens. Has anyone heard of any new meds in the pipeline for MDS? (My impression is that there are far more for blood conditions like multiple myeloma…though I’d hope there would be more MDS meds in development).
ParticipantYes, I have both…I’m 59 year old male. At first, both were said to be “smoldering” but the MDS is blamed for anemia (a drop in red blood cells). I’m taking shots to boost (damaged) red blood cells called Procrit. There’s much more work being done on MM than MDS — one solution that could potentially take care of both is a stem cell transfer from a donor with a health immune system (a controversial procedure, though many people do it). We have to hope that governments continue to fund research into MDS and blood cancers so these become “chronic but manageable” conditions.
ParticipantDifferent types, occasionally on my legs, arms, now elbow. One on my lower back. I haven’t had them in a while — the infusion Remicade usually keeps them suppressed. They can sting, and usually go away in a few weeks…my back started itching a few months ago, and my primary care doctor says she knows MDS patients who itch (there may be a histamine reaction?). I can send you a photo if you send me an alternative e-mail. Here’s one for me — I don’t mind getting e-mails here: aigle@verizon.net.
-
AuthorPosts
