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HaroldMember
Thanks for writing the letter and please add my name
William Fuller
Raleigh, NCHaroldMemberThe telephone number of the Duke Adult Bone Marrow Transplant Clinic is 919-668-1002.
HaroldMemberI was diagnosed with CMML in Oct., 2003. I had high WBCs and low platelets. RBC/HCT/HGB have remained normal. I tried Arsenic and another investigational drug without much success. I used Hydroxyurea for several months and it lowered WBC count. I started Vidaza in Oct., 2004 and I am currently on my 7th cycle. WBC count has stablized at the high end of normal, RBC/HCT/HGB remain normal, and platelet count has improved marginally and has stablized at 50K. Bone marrow blasts have been as high as 18-20% but have come done to about 7-8% while on Vidaza. Side effects from Vidaza have been minimal. Plan is to continue as long as results are good.
HaroldMemberGreg, I am 54 years old and was diagnosed during routine physical with CMML in Oct. 03. BMB showed 5% blasts. I tried Arsenic at Duke and another study drug (VNP40101M) at Duke. Neither helped. Started Vidaza 10/4/2004. Bone marrow blast count at start of Vidaza was 18-20%. BMB every 2-3 months showed slight improvement in cellularity and reduced blasts but last week’s BMB showed only 7% blasts. My local hematologist thinks the Vidaza is helping, although it’s not a “home run.” I started the 6th Vidaza cycle today. I have not experienced any complications or significant side effects from the Vidaza. Long term goal is remission and transplant. Since my diagnosis, I’ve maintained a reasonably normal life style, working each day, exercising regularly, etc.
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