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willie
MemberJeff Good luck with your BMT. Remember to get up and walk even if you don’t feel like it.
WillieMemberPatti When my wife was first diagnosed one of my children spent months and alot of energy trying to get me to take her to the Bolivian jungle to get treated by a shaman. This was usually with a mind altering concoction (ayawasca). It was tough to explain that I did not want a person with a blood disorder travelling 2 days into the jungle. Others from the US have done so. We chose the accepted medical route and it was ok for awhile. I have to believe that there could be other solutions. These solutions are not supported by our custom and by the insurance companies although that is changing. Good luck to your MIL and you with your efforts. Ultimately they may be just as effective as the accepted attempts at a positive solution.
WillieMemberDennis My wife had her transplant as soon as she could. She probably could have waited a bit longer. As it was it was winter with short rainy and foggy days when she was able to get out and walk some. She is a sun person so the winter made her effort to get up and about somewhat harder. Good luke with your donor possibilities.
WillieMemberFran What we were told was to maintain a consistent level of greens. Too much (vitamin K) will thicken the blood. They want to keep his INR at a therapeutic level and the dose of coumadin may change with how is INR level is. For my wife her INR was to be between 2.0 and 3.0.
She had a blood clot approx 2 1/2 months after her PSCT. They had put her on a combi patch for menopause symptoms. The Effexor she was taking would possibly react with the current meds. After 3 months she tested clear. You will be able to find the right amount of greens to eat fairly quickly. Good luck to your husband.
WillieMemberBritt You might want to the Seattle Cancer Care Alliance (SCCA)also. Check out their website –
seattlecca.org. Everyone is a different case, but one of the patients I met at SCCA was referred there by Stanford.MemberLucy I think I got it. Thanks, Willie
MemberMaueenh Prior to her PSCT my wife was on Vidaza. It did extend the time between Tx. She had 1 shot/day for 7 days and then had 3 weeks off. She was fairly miserable with nausea and dry heaves the days of the shots so we had to be sure to make it home in plenty of time. The timing of the antinausea meds helps.
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