MDS is a bone marrow failure disorder
MDS is a blood cancer
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Welcome to the MDS Patient Message Board Post New Thread

Welcome to the MDS Patient Message Board. We hope that you will find this to be a very valuable resource in your journey. We have recently revised the format of our forum to be much more user friendly and pleasing on the eyes. Let us know if you have any problems, or if you have additional suggestions on how we might further improve our site.

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Viewing 3 posts - 1 through 3 (of 3 total)
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  • in reply to: Newly Diagnosed #29462
    yq
    Participant

    Thanks for your reply, Richard. I appreciate you sharing your experience. Wishing you all the best! I’ll likely post an update as my dad’s treatment continues. This is a great outlet.
    Thanks again!

    in reply to: New Vidaza Patient #29459
    yq
    Participant

    My dad will be starting his first round on Monday. Thanks for sharing your experiences so far.

    in reply to: Newly Diagnosed #29458
    yq
    Participant

    Hi all. New to posting but have read through a lot of posts. My dad was diagnosed this Dec with MDS RAEB-2, intermediate-1 / -2. His oncologist tried him on revlimid end of Dec. as he has the del5q, but he had every side effect in the book (and some not–major swelling of forearms and face, up until last week) so we went for a second opinion. He will be starting vidaza on Monday and don’t really know what to expect. We are staying positive. He’s 74 and was otherwise very healthy. We’ve been told vidaza is very tolerable, but after our experience with Revlimid, I’m very worried about side effects.

Viewing 3 posts - 1 through 3 (of 3 total)

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