MDS Walk Banner

This event was held on Friday, July 20, 2018 - Boston Common, 139 Tremont Street, Boston Proper, MA 02116

1

Register!

2

Form Your Crew

Start a team or join a team!
Once registered, you’ll receive an email to help you!

3

Make Your Push

Share your story with your friends and family! Every dollar raised benefits MDS patients.

4

Walk

Have fun and make new friends!

- Events -

About the MDS Awareness Walk

The MDS Foundation is hosting its first-ever MDS Awareness Walk to raise awareness of myelodysplastic syndromes (MDS), an often unrecognized and under-diagnosed, rare group of bone marrow failure disorders that affects an estimated 12,000-20,000 people each year in the United States. Today, there are an estimated 60,000-170,000 diagnosed MDS patients in the United States, with this number expected to grow.

Although great strides have been made, more work needs to be done in MDS and to better understand the needs of patients. Inspired by those impacted by MDS, our hope with the first-ever MDS Awareness Walk is to start a movement with helping to further spread awareness and bring attention to this disease among the physician community as well as the general public.

Our goals are to:

  • Elevate the conversation around the unmet needs of those living with MDS.
  • Bring together the MDS and rare disease community and create new connections.
  • Reinforce our commitment, along with our partner organizations, to help improve the lives of MDS patients and those who care for them.
  • Establish the need and momentum for future MDS walks across the country.
What is MDS? About the Foundation
9:00am Registration
10:00am Opening Remarks
10:15am Warm Up Exercises
10:30am 5K Walk
12:15pm Award Ceremony
12:30pm Close of Walk

Make a weekend of it! Attend the MDS Foundation Patient and Family Forum in Boston the following day…

Learn More

- Sponsors -

To learn about sponsorship opportunities, email tiraca@mds-foundation.org

Myelodysplastic Syndromes (MDS) by the Numbers

Myelodysplastic syndromes (MDS) are an often unrecognized, under-diagnosed rare group of bone marrow failure disorders1, where the body no longer makes enough healthy, normal blood cells in the bone marrow. The disease is also known as a form of blood cancer.1,2

- Top Five Facts About MDS -

- Contact Us -

If you would like additional information, please contact us by phone or fax:

Phone within the US: 1-800-MDS-0839
Outside the US only: 1-609-298-1035
Fax: 1-609-298-0590
e-mail: TIRACA@MDS-FOUNDATION.ORG

or write:

The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620

Contact Us