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The MDS Foundation is hosting its MDS Awareness Walk to raise awareness of myelodysplastic syndromes (MDS), an often unrecognized and under-diagnosed, rare group of bone marrow failure disorders that affects an estimated 12,000-20,000 people each year in the United States. Today, there are an estimated 60,000-170,000 diagnosed MDS patients in the United States, with this number expected to grow.
Although great strides have been made, more work needs to be done in MDS and to better understand the needs of patients. Inspired by those impacted by MDS, our hope with the Boston MDS Awareness Walk is to start a movement with helping to further spread awareness and bring attention to this disease among the physician community as well as the general public.
Myelodysplastic syndromes (MDS) are an often unrecognized, under-diagnosed rare group of bone marrow failure disorders, where the body no longer makes enough healthy, normal blood cells in the bone marrow. The disease is also known as a form of blood cancer.
Phone within the US: 1-800-MDS-0839
Outside the US only: 1-609-298-1035
The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620