Thank you to Everyone who participated in this year’s Boston and Global MDS Awareness Walk! We will continue to accept donations up until 30 days after the event (Nov. 27th), so if you’d like to support the MDS Foundation or any of our fundraisers you still have time to do so!
The above video is a partial recording of the Main Program. Congratulations again to all of our honorees and race winners!
The MDS Foundation aims to raise awareness of myelodysplastic syndromes (MDS), an often unrecognized and under-diagnosed rare group of bone marrow failure disorders that affects an estimated 12,000-20,000 people each year in the United States, with this number expected to grow.
Dr. Coleman Lindsley is an Assistant Professor of Medicine at the Dana-Farber Cancer Institute and Harvard Medical School. Dr. Lindsley’s research focus is on basic and translational investigation of myelodysplastic syndrome (MDS) and acute myeloid leukemia (AML), specifically on understanding the impact of somatic genetic alterations on disease progression and clinical outcomes in patients undergoing allogeneic stem cell transplantation.
Dr. Lindsley has identified distinct genetic signatures associated with MDS, established prognostic models for survival, relapse and toxicity in MDS patients undergoing stem cell transplantation, and identified the cause of MDS and AML progression in patients with the inherited cancer predisposition Shwachman-Diamond syndrome. He is the Director of Molecular Diagnostics in Hematologic Malignancies at Dana Farber and has led the development and implementation of several specialized platforms for clinical genetic testing contributing to clinical samples for patient care and clinical trial recruitment.
Dr. Lindsley received his MD and PhD from Washington University School of Medicine. He then completed a residency in internal medicine at Brigham and Women’s Hospital and a fellowship in oncology at Dana-Farber Cancer Institute. He is a member of the MDS Genetics Subcommittee for the National Institutes of Health (NIH) National MDS Study and the International Working Group for Prognosis in MDS (IWG-PM) molecular committee. He is on the scientific advisory board of the North American Shwachman-Diamond Syndrome Registry and the Shwachman-Diamond syndrome Alliance.
Ilene Galinsky is the senior adult Leukemia Program research nurse practitioner for the Adult Leukemia Program at the Dana Farber Cancer Institute (DFCI) and Brigham and Women’s Hospital (BWH) in Boston, Massachusetts.
Ilene has worked at the DFCI for 32 years, beginning as a selected nurse intern on the oncology inpatient service. After serving as Charge Nurse on the inpatient service and as a Program Nurse in Harvard’s Joint Center for Radiation Therapy, she joined the DFCI/BWH Leukemia Program as a program/research RN. After receiving her Master’s in Adult Primary Care in 2004, she became the senior program research nurse practitioner in the Adult Leukemia program overseeing many aspects of clinical research activities, as well as participating in the care of many patients with leukemia and related disorders.
In her current position as the Senior Program Research Nurse Practitioner in the DFCI/BWH adult Leukemia Program, Galinsky has implemented a collaboration meeting with pharmacy and nursing at both the inpatient and outpatient setting. She was instrumental in assisting in the establishment of the strategic team for CART T cells. Ilene is currently a part of a research task force looking into safety and educational and communication programs between the research team and the clinical teams.
She serves as the co-chair of the Alliance (national oncology trial cooperative group) Oncology Nurse Committee, as well as nurse liaison to the Leukemia, Myeloma, and Transplant Alliance Committees. She is a member of American Society of Hematology and Oncology Nursing Society and has recently completed her service on the oncology board of the ABIM, serving as the nonMD representative.
Ilene has participated in numerous advisory boards, and has presented numerous lectures on MDS, AML and Car T cell therapy. She has authored and been coauthor of numerous manuscripts, posters, and other publications.
Kathy Tynan’s journey with MDS began in 2014 when her mother was diagnosed after having several other health issues. The journey for her mother was dealing with constant bloodwork, Procrit, and blood transfusions. Her mother was in her late 70’s, and MDS was something she or Kathy had never heard of before. Through being her mother’s caregiver, Kathy experienced years of learning and treatment, and feels blessed to have been by her side along that journey.
Surprise came when Kathy was admitted to the hospital for an unknown diagnosis which ended up being pleurisy. Following that diagnosis, after going through blood work, the results further revealed that she, too was diagnosed with MDS after a bone marrow biopsy. Her oncologist, Dr. Philip Wade on the Cape, referred her to Mass General Hospital in Boston who confirmed the MDS diagnosis. This came as a shock to her since it is extremely uncommon to be diagnosed with MDS in your 50’s.
Kathy’s mother passed away in December of 2017 and since then, Kathy has shown mild symptoms and has gone regularly for bloodwork to keep things in check. The last few months have brought on different concerns with bloodwork and another bone marrow biopsy. This led to the need for Procrit treatments and bloodwork weekly. A recent diagnosis of Hemochromatosis has further complicated her struggle with MDS. It by no means is an easy journey ahead but she has a GREAT support system and doctors with her every step of the way.
Kathy is very grateful to those who have battled MDS such as her mother, the incredible doctors dealing with MDS patients, her loving family and friends, and her husband and two daughters.
Kathy is excited to attend the virtual MDS Awareness Walk as TEAM TYNAN, who will walk along the beautiful landscape on the waterfront of Cape Cod she calls home. She hopes to bring more awareness to MDS and she walks in honor of her mother and all who have had MDS affect their lives and those of loved ones.
Susan Urban was born and raised in Los Angeles, California, where she has what she would describe as “the perfect childhood.” Both of her parents are of Italian descent and her family was always the most important thing when she was growing up. Susan always made an effort to better herself, and she obtained her college degree in Computer Programming with a 4.0 GPA and on the Dean’s List. Her parents, who she was living with at the time, were so incredibly proud of her accomplishments.
Fast forward about 10 years. Susan got married, had a daughter, and then unfortunately went through a terrible divorce. Her parents were always there for her and if she needed work done on her home, her dad was always there to fix it for her. If she needed help with her daughter, her parents were always there for her. They never asked her “why,” it was always “what can we do to help you.” They were both very special people.
Fast forward again, Susan’s daughter moved out of her home to attend college in San Diego. Sometime during 2008, Susan found out that her father had MDS. She had never heard of MDS before, so she took it upon herself to check into it with the MDS Foundation. The more she researched, the more she realized she wanted to help her dad get better treatment and information than he had gotten from his general oncologist. That is when the MDS Foundation asked Susan to start a support group in Southern California. Susan started the support group and ran it for about 4 years. Her support group became her family. She became so attached to the members that it became very difficult for her when one of them would pass away. Susan sought advice from her Dad, and she’ll never forget what he told her: “Susan, I understand why you can’t do this anymore but promise me that you will not give it up until you can find someone that will run it as well as you have”. On November 1, 2012, her hero, her father, this man that had been her source of strength for so many years was taken away from her by MDS. She ran the support group for another year and then handed it over to a new leader. Several years later she discovered this person let the support group go. Susan then told the MDS Foundation that she was willing to step back in and start a new group and here she is running a new support group with a bunch of fabulous people that are like family to her again.
Deborah is a Human Resource executive adept at creating human capital strategies that enhance company culture and create a high-performance environment. With more than a decade in both the biotechnology and telecommunications industries, Deborah is able to apply best industry practices to create and implement comprehensive HR programs that align with corporate goals. Currently, Deborah is Managing Partner at WindSail Insights, LLC where she consults with bio-tech companies in the Boston area. She also holds the position of Chair, Development Board for the MDS Foundation.
Deborah’s earlier career interest in international affairs brought her to the public sector where she worked as a Congressional Aide in Washington, D.C. She also worked for the United Nations in New York and Vienna for the Centre of Social Development and Humanitarian Affairs. Later, Deborah held executive HR positions with Teva Pharmaceuticals, Baxter/Baxalta, Hospira/Pfizer, and Motorola. While at Motorola, she took a three-year assignment in Beijing, China. At Baxalta, she took a three-year break from HR and led the Patient Advocacy function for the oncology franchise.
Deborah earned her B.A. in History from Smith College in Massachusetts and a Master’s in Public Administration from Middlebury Institute of International Studies in Monterey, California. Deborah has completed her comprehensive exams towards a PhD in Industrial/Organizational Psychology at the Illinois Institute of Technology. In her free time, Deborah enjoys being with her two daughters, walking her Belgian sheep dog and playing her violin.
Ryan Field is the 6pm and 11pm sports anchor weeknights on Eyewitness News.
Field joined WABC-TV after spending three years working as an Anchor/Host at Fox Sports 1 in Los Angeles. There, he hosted the network’s “FOX Sports Live”, “MLB on FOX” and “MLB WhipAround” programs. Prior to joining FS1, Field served as a correspondent for FOX Sports Detroit, where he was a host on Pistons, Tigers and Red Wings coverage from 2003 to 2013.
Ryan started his broadcasting career in his home state of Michigan as a reporter/producer with FOX affiliate WJBK-TV in Detroit and then sports director at FOX affiliate WSYM-TV in Lansing.
Field graduated from Michigan State University with a degree in journalism. His two decades of award-winning sports coverage include recognition with seven Michigan EMMY’s, including “Best Sports Anchor” in 2009 & 2012.
He currently resides in Manhattan.