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- Event Information -

About the MDS Awareness Walk

The MDS Foundation is hosting its MDS Awareness Walk to raise awareness of myelodysplastic syndromes (MDS), an often unrecognized and under-diagnosed, rare group of bone marrow failure disorders that affects an estimated 12,000-20,000 people each year in the United States. Today, there are an estimated 60,000-170,000 diagnosed MDS patients in the United States, with this number expected to grow.

Although great strides have been made, more work needs to be done in MDS and to better understand the needs of patients. Inspired by those impacted by MDS, our hope with the Virtual MDS Awareness Walk is to start a movement with helping to further spread awareness and bring attention to this disease among the physician community as well as the general public.

Our goals are to:

  • Elevate the conversation around the unmet needs of those living with MDS.
  • Bring together the MDS and rare disease community and create new connections.
  • Reinforce our commitment, along with our partner organizations, to help improve the lives of MDS patients and those who care for them.
  • Establish the need and momentum for future MDS walks across the country.
What is MDS? About the Foundation
10:00am Opening Remarks
10:15am 5K Walk
11:30am Award Ceremony



Form Your Crew

Start a team or join a team!
Once registered, you’ll receive an email to help you! You can create or join teams after you've created a fundraising page.


Make Your Push

Share your story with your friends and family! Every dollar raised benefits MDS patients.



Have fun and make new friends!

Myelodysplastic Syndromes (MDS) by the Numbers

Myelodysplastic syndromes (MDS) are an often unrecognized, under-diagnosed rare group of bone marrow failure disorders, where the body no longer makes enough healthy, normal blood cells in the bone marrow. The disease is also known as a form of blood cancer.

- Top Five Facts About MDS -

- Contact Us -

If you would like additional information, please contact us by phone or fax:

Phone within the US: 1-800-MDS-0839
Outside the US only: 1-609-298-1035
Fax: 1-609-298-0590

or write:

The MDS Foundation
4573 South Broad St., Suite 150
Yardville, NJ 08620

Contact Us