MDS Fundraising Events – Working Together For MDS

Since 2014, the annual Tom ‘Shu’ Shuey Memorial Golf Tournament has gathered members of the community to celebrate the life of this grandfather, father, and husband, who passed away in 2014 after battling MDS. Tom’s son, Timothy Shuey, and his family held their fifth annual charity golf tournament on August 2nd. Shu was an avid golfer and one of Tim’s biggest regrets was missing his last opportunity to golf with him.

Shelly Helm Guzek organized an ATV wheeler ride and mud run on September 15th in memory of her son, Taylor Moen who passed away on October 26, 2014. There was a 6 hour 4-wheeler ride with a mud pit to “Trash the dress for MDS” with $1,776.00 of the proceeds being donated to the MDSF.

July 1, 2015 marked the 1 year anniversary of Anthony Pelle’s passing and although we never met him we feel we know him through his daughter Janna. Janna is an MDS Advocate in the truest sense. In honor of her Dad, both while he was alive and even in the wake of his passing, she continued to be involved with the MDSF, sharing her story in our newsletter, creating her music album The Show Must Go On, and performing at our 13th Int’l Symposium.

Dylan Seth, fifth grader at New Canaan Country School, participated in a run to spread awareness about MDS and the MDS Foundation. Her mother, who is battling MDS, is hoping to find a bone marrow donor.

Michael Bennert’s good friend, Bob Oglesby, suffered from MDS and has sadly passed away. In his memory, Michael helped organize a charity golf tourney to help raise MDS awareness and to benefit the MDS Foundation and its work.

Steve Perry selected and signed up for the Monster Dash Half Marathon on Oct. 27 in St. Paul, MN. He chose this race to run in memory of his dear friend, Greg Savage, because it was in his spirit of fun – Halloween. He set up an online page for donors to make donations directly to the MDS Foundation.

On Saturday, August 22, Paul Wenzel held his annual charity golf tournament named in memory of his mother, Karen, who passed away from MDS in 2006. Eight years of tourneys have raised over $30,000.

In memory of Bill Springer, Paul Howlett and his family held their second annual charity golf tournament to help support the MDS Foundation on June 14, 2019 at the Williams Golf & Country Club in Weirton, WV. Their current target date for next year’s event is Friday, June 19, 2020.

Starting in April, JS Allen and Bonnie Getter began hiking the Pacific Crest Trail to raise money for MDS. The trail, known simply as the PCT, is a continuous 2650-mile wilderness trail stretching from Mexico to Canada through California, Oregon and Washington. Just hours east of the largest cities of the west coast, the trail crosses deserts, forests, rivers and the highest mountain range of the continental United States. The long-distance hikers that follow its spine race the seasons to hike as far as possible.

THANK YOU to Laura Geltch and the models and photographers from Model Me Philanthropy for donating the proceeds from your event held on July 7th at the Burlington Country Club, Westampton, New Jersey.

In lieu of gifts, Michelle Lamberton and her fiancé John asked that donations be made to the MDS Foundation in honor of their wedding on April 18, 2015 and in memory of her mother, Ms. Kathleen Edwards. They hope the donations will help find a cure for MDS. $4,626.00 was donated.