MDS is a bone marrow failure disorder
MDS is a blood cancer
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One of the MDS Foundation’s goals is to expand the number of support groups worldwide. We are always on the lookout for people who are willing to start a group, offer some support in their area, and widen our support services to include more individuals affected by MDS. We want to make it as easy as possible for volunteers to create and run support groups to ensure they can provide continuous comfort to those utilizing them.

We have created a Support Group Leader Toolkit that will provide guidance on how to run the group, suggestions for discussion topics, useful tools like sample letters and forms, and various other resources to help the meetings run smoothly.

If you are interested in starting a support group of your own, please contact Audrey Hassan at 1-800-MDS-0839 Ext. 210 or email

Downloadable Sample Forms

MDS Support Group Needs/Interest Assessment

MDS Support Group Evaluation

Sample Letter – Welcome to our MDS Support Group

Sample Letter – Support Group Leader Introduction

Sample Letter – Health Care Professionals

Sample Meeting Flyer/Invite

Sample Letter – Initial Support Group Meeting

Review answers to commonly asked questions or get answers to your questions from an MDS expert