MDS is a bone marrow failure disorder

About MDS Manager Study

Welcome to the MDS Manager Study

MDS Manager Study
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Pre-Study MDS Manager Questionaire

MDS Manager Study Post Study Questionnaire

MDS Manager
Study Results

About the MDS MANAGER Study

1. What can I expect from participation in the MDS MANAGER Study?

2. What are the risks and benefits of participating in the MDS MANAGER study.

3. Is my personal health information protected?

PLEASE NOTE: the security features DO NOT control the content of images taken by users and submitted to the app. Therefore, any images taken should not include personal identifiable information (PPI) Users are encouraged to black this information out prior to taking a photograph.

4. Will the results of the study be shared with me?

5. Study requirements

6. Time commitment

  1. The study requires 4 weeks of participation.
  2. The amount of time required for participation in the MDS Manager Study will vary by participant depending on the amount of information the participant chooses to enter in the app and the resources accessed via the app or the study portal.
  3. The registration process will take approximately 15 minutes.
  4. Completion of the study questionnaires will take 20-30 minutes at the start of the study and again on completion of the study.

 

7. Confidentiality and disclaimer

Acceptance of the terms of the study implies consent to participate.
I decline participation in the MDS manager Study

Thank you for your interest in participating in The MDS Manager Study. You can continue to use MDS Manager to assist you in LIVING with MDS. We hope you will take advantage of the many resources included in MDS Manager provided by The MDS Foundation. If you would like to participate in the MDS Manager Study later, please check back to the MDS Foundation Website for more information. You can also contact:

The MDS Foundation patient liaison:

Phone within the US: 1-800-MDS-0839
Fax: 1-609-298-0590
e-mail: PATIENTLIAISON@MDS-FOUNDATION.ORG

Review answers to commonly asked questions or get answers to your questions from an MDS expert