MDS is a bone marrow failure disorder

1. What is MDS MANAGER?

2. Is my personal health information protected?

PLEASE NOTE: the security features DO NOT control the content of images taken by users using the photo feature of the application. Any images taken should NOT include personal identifiable information. Users are encouraged to black this information out prior to taking a photograph.

3. Confidentiality and disclaimer

If you would like assistance in registering for the MDS Study or have additional question send an email to:


Consent implies acceptance of the terms of the study

Thank you for your interest in participating in The MDS Manager Study. You can continue to use MDS Manager to assist you in LIVING with MDS. We hope you will take advantage of the many resources included in MDS Manager provided by The MDS Foundation. If you would like to participate in the MDS Manager Study later, please check back to the MDS Foundation Website for more information. You can also contact:

The MDS Foundation patient liaison:

Phone within the US: 1-800-MDS-0839
Fax: 1-609-298-0590

Review answers to commonly asked questions or get answers to your questions from an MDS expert