MDS is a bone marrow failure disorder

About MDS Manager Study

Welcome to the MDS Manager Study

MDS Manager Study
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Pre-Study MDS Manager Questionaire

MDS Manager Study Post Study Questionnaire

MDS Manager
Study Results

Welcome to The MDS Manager Study

Welcome statement:

Welcome to the MDS Manager Study.  We look forward to your participation in the study entitled:  The impact of a mobile health application on technology engagement and communicative health literacy in older adult cancer survivors.

MDS ManagerTM is a health and life management mobile health application (mHealth App) tailored for patients and caregivers LIVING with Myelodysplastic Syndromes (MDS).

The features included in MDS Manager are intended to help individuals LIVING with MDS to actively participate in their own care by providing a variety of tools to track information related to their health, and quickly link the user to tailored resources.

You will be guided through a series steps over the 4 weeks study period.

  1. The baseline questionnaire will take approximately 20-30 minutes and can be completed on your device or online via the MDS Manager Study Portal.
  2. You will then be guided to explore the MDS Manager User Guide if you have not done this already.
  3. You will receive periodic notifications/messages during the study to help guide you to resources tailored to your MDS profile. You can access these resources through your device, or can also visit the MDS manager Study portal to access your data and these resources on your home computer.  All connections are secured as described.
  4. At the end of the 4-week study period you will be directed to complete an end-of study questionnaire. The end-of-study questionnaire will take approximately 20-30 minutes
  5. If you have questions at any time during your participation in the study, please contact the MDS Foundation:

Phone within the US: 1-800-MDS-0839
Fax: 1-609-298-0590
e-mail: PATIENTLIAISON@MDS-FOUNDATION.ORG

You will be directed to the best resource to answer your question, including the study’s Primary Investigator or technology support.

Review answers to commonly asked questions or get answers to your questions from an MDS expert