Phone within the US
1-(800)-637-0839Outside the US only
1-(609)-298-1035Address
The MDS Foundation
228 Park Ave S
PMB 118983
New York
NY 10003-1502
A global non-profit advocacy organization, supporting patients, families and healthcare providers in the fields of MDS and its related diseases for over 30 years
© 2024 MDS Foundation. All rights reserved.
Every gift helps patients, caregivers, and healthcare professionals access life-saving resources, support, and education. Together, we can make a difference. Even a small contribution can create a big impact. Thank you for your generosity.
We know that navigating MDS-related anemia can feel overwhelming, and finding clear, reliable information is crucial. That’s why we’re excited to introduce myMDS, a set of resources designed to help you better understand MDS and feel more confident in conversations with your healthcare team.
An easy-to-understand, gardening-themed guide that helps people with lower-risk MDS understand their diagnosis, test results, and treatment options. This resource explains key concepts and includes a glossary to support learning and discussion with healthcare providers.
A companion question guide designed to support meaningful conversations with your healthcare team at every step of the MDS journey. This tool helps you ask the right questions about symptoms, diagnosis, test results, treatment planning, and ongoing monitoring.
Both resources have been developed in collaboration with leading advocacy organizations, with support from Bristol Myers Squibb (BMS), to ensure they meet the needs of patients, caregivers, and families affected by MDS.
Thank you to Bristol-Myers Squibb for supporting this initiative.