MDS is a bone marrow failure disorder

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Peripheral smear blasts?
Hi my name is Anne, I am new here. My twin sister recently had a cbc that ended ...
3 days, 10 hours ago
no more transfusions
I have been following a close elderly friend, who was diagnosed with MDS, a ...
2 days, 14 hours ago
Isolatedl del (5q) and my Wife
My wife was recently diagnosed with Isolated del(5q) MDS. I do not no much ...
3 days, 23 hours ago


Would you like your treatment center to become part of the referral system for MDS patients and be designated as a Center of Excellence? To be recognized as a Center of Excellence, an institution must have:
  • An established university (or equivalent) program
  • Recognized morphologic expertise in MDS
  • Available cytogenetics and/or molecular genetics
  • Ongoing research, including Institutional Review Board-approved clinical trials
  • Documentation of peer-reviewed publications in the field
Clinical trials study new interventions (drugs or procedures) to evaluate their safety and effectiveness in humans. Trials follow a careful set of steps, allowing for the systematic gathering of information to answer questions and confirm hypotheses that were formed earlier, in either laboratory experiments or preliminary trials. If you are an MDS patient, you may wish to discuss a trial with your primary treating physician to see if you qualify as a candidate. LEARN MORE
Agios Pharmaceuticals, Inc. Announces Plans to Initiate an AG-221 Expansion Arm in High-Risk MDS Patients
Read Press Release Here LEARN MORE
Onconova Enrolls First Patient in Phase 3 INSPIRE Trial of Rigosertib
December 7, 2015 Onconova Enrolls First Patient in Phase 3 INSPIRE Trial of Rigosertib Patient Randomized at MD Anderson Cancer Center; Four U.S LEARN MORE
Upcoming Events
  1. Quality Care Symposium

    February 26 - February 27
  2. MDS Patient and Family Forums – Los Angeles, CA and Tampa, FL

    February 27
  3. Southern Ontario, Patient Support Group Meeting

    February 27 @ 10:30 am - 12:30 pm
  4. MDS Ireland Support Group Meeting

    February 27 @ 11:00 am - 3:00 pm
  5. Rare Disease Day

    February 28
Review answers to commonly asked questions or get answers to your questions from an MDS expert