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HomeForumsPatient Message Boardplatelet counts dropping – has the vidaza stopped working?

This topic contains 3 replies, has 1 voice, and was last updated by  Terri 7 years, 10 months ago.

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  • #17047

    jen06
    Member

    My dad (who has RAEB)is now about to have his 6th round of vidaza. Before the treatment started, his platelets dropped to 19, however after a couple of months they soon went up to the 200 mark and even reached 300 at times. However, during the last 2-3 weeks they have dropped rapidly and yestereday were only 110. He does not seem any iller in himself, but is obviously concered. I have read many posts were the vidaza suddenly stops working – is this the way it normally happens? We live in the UK so do not have as many options as those in some other countries. Would appreciate any advice.

    #17048

    sdrake
    Member

    jen06,

    Dad’s platelets have fluctuated between a low of 50 and a high of about 275 since he has been taking Vidaza. I don’t want to tell you it isn’t a cause of concern, but while 110 is a little low, it isn’t bad.

    Shari

    #17049

    SLStrout
    Member

    jen06,

    My husband’s platelets have fluctuated quite a bit since his diagnosis last August, fluctuating even before he started taking vidaza. They were as low as 11,000 in early December 06, prior to his second round of vidaza. After that round, they went up to as high as 81,000. Then dropped to 14,000 in early January 07, then went to 34,000. He finished his third round of vidaza two weeks ago, and we do not know what the results of that are yet. So, it’s a bit of a scary ride, but he’s feeling and doing fine.

    #17050

    Terri
    Member

    Bobs Platlets never get over 50 he has been on vidaza for over two years. We wish they would get up over a 100. He does the pineapple and other supplements but The plts don’t budge.

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